I spoke with my friend Janelle this morning. Her little girl has a severe chronic condition and had taken a very bad turn. My heart broke for her. Then she asked about Mason and she found out that Mason had taken a bad turn as well. (seven seizures in one day, with a dramatic increase in his tonic drop seizures)
To which Janelle responded with "I guess we're in the same boat today."
The next moment she burst into a familiar kids song - "With Jesus in the boat we can smile at the storm, smile at the storm, smile at the storm!"
You have to realize we were two mom's with tears running down our faces when we both burst into laughter.
This day has not been easy. We went into Childrens Hospital in the afternoon to weigh Mason. In the next day or two we will decide if we will restrict his diet yet more, or think about another medication. There really are very few, if any, options left.
Although it looks like another hurricane is comming our way, Jesus is in our boat.
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