Travis

A little while back I let you know about my friend in Michigan whose son also has Epilepsy. She sent this today:

fyi for those who don't understand all our lingo:

- intensive monitoring: that's what Travis is undergoing right now. He must stay on camera so they can see the seizures as well. Have you ever tried to keep a kid in a bed for a few days straight? While he's attached to a wack-load of wires?! They also have to be sleep deprived for this, as that often triggers more seizures. Mason has had quite a few of these sessions, and they are not pleasant, to say the least. They stay hooked up until they have received enough data. anywhere from a day or two to a week or more.

- leads: wires that are attached to a computer that records electrical brain activity. The leads are glued on to the scalp, then they put this mesh toque on to keep it all in place. It's very uncomfortable and the kids tend to try to pull it off. Glueing the leads on can take an hour or more, depending on how many there are, what kind of glue they use etc. 

-pray for seizures: This is the one time that it is GOOD to pray for more seizures. And some big ones, too! The more info the dr's get, the better.

Yesterday was the first day for Travis at the hospital, prayer is already paying off as the applying of the 28 leads to Travis' head went better than expected he fought it a little, but the EEG techs were so good and worked so fast that I think they did it in record time - Randy and I were able to keep him busy doing his puzzles and such that there wasn't nearly as much resistance as we expected.  We of course had to keep him entertained frequently and we can't leave him alone for a second as he will have the netting cap covering the leads and wires off in the matter of a nanosecond - I'm sure you know what that's like LOL!! So now we are hoping for some seizure activity events for them to check out without having to take meds away to do so, they are also interested in the general state of his EEG outside of the seizure activity.  Thanks again for the good thoughts and prayers they are appreciated and needed. I'll keep you posted.  Suzanne

REMEMBER TO WEAR PURPLE FOR EPILEPSY AWARENESS!!! MARCH 26