We are having this done because his seizures have been up in general. We got in quite quickly. Three weeks, rather than 3 months. I'm trying to get out of denial. Although the seizures are up, they are still no where near what they were before surgery. So I justify it that way. Not necessarily what I should be doing!
This is what happens: After sleep-depriving him tonight and keeping him awake for the drive in to Children's Hospital (over an hour away), we strap him down in a full body velcro kind of thing, shoulder to feet, I lay on him, trying to calm him down, as he is screaming the whole time, face beet red (one time he even had peticial hemorrhaging - tiny blood vessels bursting all over his face because he screamed so hard and so long). So for the next 1/2 hour this goes on while the EEG technician marks his head and then glues 25 - 30 leads (wires) onto his head. These leads are all attached to a computer. Then the technician ( I hope it's Renee) records various stuff on the computer while watching everything. They look for changes in the brain waves while he's awake, as he's falling asleep, during sleep, waking, then awake. They flash lights at various speeds to see if that triggers anything. Sleep deprivation can often trigger seizures, and the stress of strapping him down can actually work in our benefit if it triggers more seizures. During this testing time, pray for more seizures!
Mason's vocal tic is also back. Not sure why. It's a Tourette's type of vocal noise he makes randomly.
1 comment:
Praying that seizures calm down and that they are able to get a good understanding from the EEG.
Although Karter's EEG's are not quite as traumatic, I still hate having to take him for them.
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